Kshitij’s parents knew something wasn’t quite right when their six-year-old son started falling while walking. Their fears were confirmed when Kshitij’s doctor diagnosed him with Duchenne Muscular Dystrophy (DMD).
DMD is a rare disorder, causing muscle weakness that progresses throughout the body. Kshitij’s family was devastated to learn that to this day, there is no cure.
At first, no matter how hard they looked, the support their talkative and bubbly son would need, just didn’t seem to be available in India. Just when things seemed impossible, Kshitij’s dad Anup heard about experimental treatments around the world. He reached out to clinical trials in Germany, the United States and Canada – everywhere! Dr. Craig Campbell at Children’s Hospital in London, Ontario responded with such kindness and encouragement that Kshitij’s family made the monumental decision to move halfway around the world!
Ten years ago, at Children’s Hospital, Kshitij’s family found more support than they thought possible. Kshitij began receiving regular IV infusions that could provide life-changing information about DMD, and potentially improve his condition. Now, as Kshitij goes in for weekly bloodwork and monthly infusions, he isn’t simply appreciated as a clinical trial patient, but also for being himself – a chatty, tech-loving teenager.
From Lego as a small child, to successfully building his own desktop computer, Kshitij has grown up with the support of Children’s staff. The Children’s Hospital community has created a safe, fun environment that has become a second home to Kshitij and his family.
Today, as Kshitij prepares to head into adult care, he has his whole Children’s family right by his side to cheer him on!
Supporters like you make Children’s Hospital a world-class beacon of hope. Your support of innovative and ground-breaking research means that when families like Kshitij’s don’t know what to do, Children’s is here to offer them compassion, comfort, and a chance at better days.
